Washington Wizards vs Boston Celtics

I know. It’s been a long time, mostly because we’ve been waiting to see how the dust settled on Ari’s cardiac condition since his last surgery in May and cath in August.

As per usual, I’m going to make you slog through some reading before we get to the cardiac stuff.

As a kid, Ari is a blast. If you asked me last year if he could be any more addicted to sports, I’d say no. Yet, he is. We get requests to play or watch at least 5 of these a day: basketball, hockey, soccer, golf, baseball, football, bowling, and women’s volleyball. No joke, he asks to watch golf and bowling. When they’re on, he watches. Intently.

And when women’s volleyball is on, Ari says, “They’re pretty.”

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Ari’s new thing is golf. He wakes up in the morning and calls for us. When we go in there’s no hello. No, “Did you sleep well daddy?”

It’s “Watch golf. Bubba Watson!”

He’s a player, too. If he’s not shooting hoops, odds are he has a club in his hand, swinging away in the living room. We’re working on putting because, you know, we like our floors without the divots, but it’s a work in process.

On Saturday morning I was excited to ask Ari when he work up, “Ari, do you want to go watch real golf?” Of course he did, so off to Stow Acres Country Club we went. First up, driving range. We watched some guys hit balls and he was thrilled.

It wasn’t so busy, so we got a bucket, went off to the side, and teed up. He missed a few, but not necessary more than I did. When he connected, he actually got some yardage! Not even 2 and a half yet, and hittin’ ‘em good.

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Guessing game ends

When we last left our hero, he was headed off to headline the Heart Ball. There we talked to Ari’s cardiologist and surgeon about whether we should have surgery on May 12 to replace his pulmonary valve.

Later that week we learned that while he looked good on the outside, an MRI showed his right ventricle was holding more than twice the blood it should, contributing to very high pressure. It was time to act before damage became permanent. We’ve been waiting a year and half to find out when we would do this. Now the guessing game was over.

Our last post-surgical hospital stay was 4 months. Doctors said if this surgery was smooth sailing—and there was no reason it shouldn’t be—he could be home as fast as 3-4 days. You’d figure they knew Ari by now…

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Last night was the American Heart Associations annual gala Heart Ball. Ari was the featured heart warrior of the night. Here is a copy of my speech about Ari, along with the video Erica and I made to share a bit of Ari with everyone. It was a true honor to be a part of such a great event, and to get the opportunity to recognize Dr. Wayne Tworetzky and Dr. Ram Emani.

I posted the video up top here, but if you can stand waiting, watch it below where it appeared in the speech.

Also, it’s not in the speech as they noted it another time, but my next book, Insight Selling, just came out this week. For all books sold through May 10, we are donating all of our royalties to the American Heart Association’s fund for congenital heart defect research.

And here we were before we headed out to the event:

Schultz family Heart Ball

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His Own Voice

Ari Cath Lab

When I first started writing Ari’s blog, the primary reason was exhaustion. I was on the phone until 1 a.m. giving updates several days in a row. It was too much. So I started to write.

People asked if it was therapeutic as well. Sorta maybe, but during a crisis it’s more war chronicling than journaling. “We’re in the foxhole. They’re shooting at us.” Soothing? No so much.

As I’ve noted in the past, the blog eventually gave Ari a voice. That’s when it became more for me than a convenient excuse way to avoid people give updates. And this was before Ari’s voice really came alive when he started posting his own updates.

Here on Echo of Hope, Ari has:
– Been a spy on a secret mission
– Won the World Wrestling Federation heavyweight championship
– Been interviewed by Time Magazine
– Starred as a special guest on Who’s Line is it Anyway?
– Delivered the commencement address at Harvard Medical School
– Reviewed Erica and me as parents

And more.

As of this moment, however, Ari will write no more posts.

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Ari 20 months

***Note: It’s Congenital Heart Defect Awareness Week. Please like and share with reckless abandon! It’s more important than ever right now. Keep reading to find out why.***

A little while back I saw an old friend post on Facebook, “I’ve changed my last diaper!” The youngest of his three girls had finally gotten the hang of the potty.

For him, gone were the thousand-wipe-a-day, 5 outfit switching, blow-out riddled trips to the mall. Gone were the days of spoon feeding stage 1 purees to the bib, the floor, his sweaters…pretty much to everything but the kid’s elusive pie hole. And, gone were the days of complete reliance on parents for dressing, eating, getting up and down the stairs, and the seemingly endless changing of the attached-with-stickies personalized disposable bum-hugging potties.

Seemingly endless, until, you know, it ended.

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Ari Bam Bam

Early last week, I was asked  introduce Dr. Jim Lock, Cardiologist in Chief at Boston Children’s Hospital, at a major event focused on raising money to support research and innovation for the hospital. I only had a brief window on Tuesday night to prepare remarks for Thursday’s event as I had to, you know, work like everyone else during the days. By the time we’re done with dinner for the kids, bathtime and bedtime, and prepping meds for the following day, it’s usually pretty late.

No motivator like pressure, right? Here are my remarks and the pics I used in the presentation.

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