And the verdict is…It’s Pajama Time! Besides that, no news on how his heart is doing. The procedure is trying and he’s taken a few days to settle out, but he’s in a better mood now. Obviously.
Plan is echo in the next few days to see what’s up. Until then, we won’t know. This, of course, drives us bananas.
We need some solid improvements by echo to be in an OK place. His right side pressure needs to be lower. And we need to get a sense that his left atrial pressure is lower, which you usually can’t measure except in the cath lab, but they put a new hole in Ari’s heart that can give us a bit of a sense of how that’s doing, but not much.
You can think of both of these pressure readings like a car and RPMs. There’s a green zone where we all drive every day, a yellow zone you shouldn’t drive in for long, and a red zone that you can, indeed, drive in, but after a while you’ll blow the engine.
Ari was driving in the red zone before the cath. He looked fine on the outside, but ultimately it’s unsustainable. The engine can only take it so long.
Unlike a car, however, we don’t know what, exactly, his green zone territory is. All we know is it’s not where he was a few days ago. Not exactly bleak, but we need some real movement.
More info as we get it.
Meantime, when the world goes bananas, get in your pajamas.
Echo of Hope 
Glad to see he still has his favorite binky and everyone’s favorite laugh!!! Always in my thoughts of course xoxoxo
I am so enamoured with your precious family and the star of the show, Ari. You all pass through my thoughts often in a day and I pray that your next post will deliver stellar news. I thank God for my healthy, and kind children each day. It is my sincere hope and prayer that twenty years from now you will so the same. Your family has deeply touched mine
Love this little video. I’m thinking of you guys constantly, hoping there is still hope for swimming lesson — we need some video of that!!
Keeping you all in my prayers every day. Be well!
I’m in my pajamas, awaiting further instructions. In the meantime I’ll just keep you all in my heart.
Erica, Mike and Ari, You three are in our thoughts, heart and prayers. Ari has come through so much already keep fighting on and hang on to each other.Love
Look at how much he loves his Mommy!!! You can tell just by the look on his face. Personally, I love pajama days. News years weekend, I spent 3 out of 4 days in my jammies. Ari’s just laid back!! J dubb says he chills in jammies all day everyday if he can!!! And he can b/c he stays with Granny while Mommy and Daddy work. Be good Ari, we love ya!!
It’s heartwarming to hear him laughing, They’re amazingly resilient. I’m praying for you guys.
Love to hear Ari’s laughter!
Hang in there Ari! Praying for you! ❤
Hang in there big guy and keep the smiles coming! Jamma to the left, Jamma to the right, Jamma Jamma Jamma Jamma P! J!
Hoping and praying for good. Or at least better. He’s so cute, brought a smile to my morning! Thanks for keeping us informed.
Oh Ari, we’re here for you. Keep the faith mom and dad.